Community capacity amongst people living with HIV/AIDS

Mobilisation of people living with HIV/AIDS in the 1980s was tied to social identity and the public rendering of AIDS as a gay disease. This activism has continued in large cities alongside new streams of mobilization addressing the needs of groups such as women and Aboriginal peoples living with HIV. We draw on interviews conducted with six people living with HIV/AIDS in a small Ontario city where the population does not allow for services tailored to specific groups. We investigate experiences of social engagement amongst people living with, and affected by, HIV/AIDS and examine why efforts to establish a community-based participatory research project was unsuccessful. Drawing from indicators of community capacity developed by Jackson et al. (Health Promot Int 18(4): 339–350, 2003) we identify the role of stigma both amongst different groups living with HIV/AIDS and the wider public as undermining a common sense of community and, potentially, our efforts to establish a community-based participatory research process.